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Darcy is autistic, with epilepsy and dysphasia, which makes it difficult for her to talk, and also has no sense of danger.

Lucas has epilepsy, is non-verbal and is fed through a tube into his stomach, and his mother Becci said he "needs someone with him at all times."

"Her fight to find treatment for her son Alfie's rare and severe epilepsy led to a breakthrough that changed his life and ultimately changed the law."

The teen was also diagnosed with epilepsy which affected her confidence socially.

"In that category of so-called natural causes deaths are 30 and 40-year-olds who are dying from things like heart attacks or from diabetes or epilepsy," said Prof Armstrong.